Almost to the end of AUGUST

Hi Everyone! I hope you all are having an amazing summer! I cannot believe its almost the end of August and almost summers end :( Time surely is flying by.

Well Makayla had her last day of summer school at Ken O Sha August 18th so we are enjoying her summers end with many "mini" adventures before she heads back to school at Pine Grove in which she will be transitioning to full days instead of 1/2 days. So this will be an adventure in itself.

Just wanted to update a little bit seeing how things have been very busy. I will definitely be posting about Makayla's "mini" adventures before returning to school for fall and definitely watch for an update on her 1st day as a Kindergartener at a new school.

Here are some clips of our Summer 2011 so far, we've been having adventures to zoos, islands, ferrys, lakes and beachs...oh my :)

Sorry its been awhile.....

Wow I didnt realize its been so long since I posted a blog. Not to much has been going on just trying to get through the winter and into the spring for nice warmer weather :)
Makayla has been doing really well this winter especially with the yucky germs that go around. We've been pretty lucky we have only had a few times where she hasnt felt very good but nothing too serious...phew counting our lucky stars. She is donig really well with her balance, even her teachers at school have noticed how well she is doing. She recently was fitted for arm braces and let me tell ya she dont like them but i think its helping her in the long run. She has been trying very hard to communicate with us, for instance last night before dinner was done our youngest was sitting at the table with her plate waiting for it to cool off and Makayla came walking over to the table stared at the food and starting making a big fuss to let us know she was hungry too! It was awesome to know she was letting us know what she wanted. Once she was in her seat eat she was perfectly fine and let me tell you she wasted no time in eating...LOL...
Other than that we are just surviving the winter and waiting for spring. We are looking forward to our days outside especially going for walks and bike rides.

Summer School started

Well Makayla has started her summer school sessions at ken o sha. She is going 3 days a week for 2.5 hrs a day. She just loves school so much i think she really enjoys the bus ride the most. She leaves happy and comes home the same way giggling and smiling.
The have been working with her this past week on using her hands and holding her own cup, she has been doing really good with using her hands well its hand over hand but i'll take anything at this point as long as my little girl gets use out of her hands. THey said she has hit the communication buttons quite a few intentionally!! She makes me soo proud. They usually have swimming at school but this summer they are having issues with there pools water temperature so no swimming this year :( But on the bright side her aunt marci and uncle jay have a huge inground pool that we can use anytime, it does so much for makayla's legs, i have never seen her little legs move so fast...lo...it definitely tuckers my little girl out but she sleeps soo well afterwards. She continues to get physical therapy at school which i am wondering if thats enough for her or should i be putting her into some sort of physical therapy through the hospital?? I am debating what to do. we will see how everything goes for a few weeks with the school therapy and i think i will have a chat with them to see what they think as well. Well so far everything is going good today so i am off to take the girls for a little walk on this beautiful day :)

Makayla's 5th Birthday

I cant believe it has been 5 yrs since my beautiful angel was born to us on June 10,2005. Where did the time go? From that very moment I held her in my arms my heart melted and I was forever in love :) She is my world, my everything. We had a great time with 2 celebrations for our girl. She had a smaller party on her birthday and a bigger celebration this past saturday. She is such a lucky little girl with all the love and support from family and friends. She enjoyed every minute of her parties. It has been quite the 5 years that for sure. Our little girl was happy and health when she was born, little did we know almost 2 yrs later her life and ours changed forever. We go the news that our little girl has Rett Syndrome. She was developing fine and keeping up til about 18 months of age, she just began to walk and then about a year and half later she lost all of her vocabulary and the use of her hands. She is a fighter and has been doing pretty great the past 5 years. She is 42lbs and is 39 1/2 inches tall. She is growing great, her primary doctor and specialists say she is doing great for her age. She is beginning to get some vocab back, the only words she can say so far is mama and dada, 2 words that melt my heart :) She has a little sister that teaches her so much and Makayla just loves to watch and play with her. I believe in my heart that god sent us Madison for Makayla. Madison is gonna teach her sister so much and bring her out of this I just know it, since Madison has started walking and talking we have seen such an improvement with Makayla's development. I look forward to spending the next 5yrs with her and to see how far she has come. Happy Birthday Angel we love you with all our hearts